On Christmas Eve, M1 sang her first solo.
Tuesday, December 26, 2006
Saturday, December 23, 2006

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Just for fun, thought I'd post some pics of me...before and after. Hmmm. Let's see if this works. I think the "sickest" picture of me was the one Rodney took at the church Church Christmas dinner. However, when I exclaimed how "sick" I look, I was informed that at that point (at the beginning of the party) I looked good. I got really sick later -- I think I startled everyone. (The picture startled me!) Most had only seen my "well" chemo look at church. (Which is pretty "sick", actually!!)
The one of Bob and I is a "well" picture -- while I'm on chemo. It was taken two or three weeks ago. The purple shirt picture is from the weekend of JCC anniversary -- a couple of days before the lumpectomy and before chemo. It's amazing what four months can do with three surgeries and several quarts of poison (The doctors call it Chemotherapy) in the bloodstream. :)
(Have to go to the JCC computer and retrieve the "sick" picture. Patience!) If I get really brave, I'll put up a bald one too. :)
PJDH
Friday, December 22, 2006

And one more shot of my girls. Aren't they the cutest?
I didn't realize it was 10 days between the last two blogs. Probably the longest since last Spring. I think it has been the irregularity of my hours. I prefer blogging in the morning, but without a set time, it sort of gets shoved aside. And...in order to be ready for Christmas, I've used every hour that I feel decent in Christmas prep. Hmmmm. Maybe holiday stress clogs my blogger. :) That sounds like a story title, The Clogged Blogger.
Later,
PJ

Caffeine
These last three and a half weeks has been different. The days don't follow any pattern (You know, they're random, first Thursday, then Tuesday, etc! Ha! Just kidding) That is my well being doesn't follow any pattern. Randomly, I may be ill as can be all morning, then productive in the afternoon. Occasionally I'll get ill about 5 p.m. or 6 and be sick as a dog half the night. Sometimes it hits in the middle of the night. Right now, it's 2 in the afternoon and I just had to stop and take a Zomig for a pending headache. (Hopefully that will take care of it.) It doesn't seem to be related to activity, stress or any pattern at all. Perhaps the allergic reaction is irrational. My hands are much better now. Still peeling. And my feet are peeling like crazy. I have about three more weeks before anymore chemo. That's good.
So, I just take each day as it comes. If I spend the morning in a dark room with an ice pack, so be it. If I spend a night sleeping in my "sick chair" (That's what the girls call the comfy chair where I sit when I don't feel good.), then I just adjust plans for the day. Flexibility is the name of the game. But all in all, it's been good. I'm just about ready for Christmas. One more trip to the mall for a couple of small items and I'm done.
Here's for a Blessed Christmas to you and yours,
PJDH
Thursday, December 14, 2006
Speaking of books, I've read two very good ones lately. Get Out of That Pit by Beth Moore is written in a very conversational easy to read style. (Integrity Publishers, a division of Thomas Nelson) Available at your Christian bookstore. I've already bought another one for a friend because I want to hang onto mine, but want to share the ideas.
The other is The Angels of Morgan Hill by Donna VanLiere. (Publisher: St. Martin's Press, New York) I bought mine at Sam's Club. It's a novel about a small town in Tennessee right after World War II and how that town deals with discrimination, poverty, tragedy and learning to live and love. Easy Read. Restores faith in humankind.
PJ
Tuesday, December 12, 2006
The girls on M2's birthday just before she opened her Bitty Baby Twins. M2 was convinced that morning that she was now bigger because she is five! M2 will turn seven in January. This allergic reaction has complicated things considerably. I haven't recooperated with my usual speed and panache. These weeks to rest and heal are needed. I don't actually feel terrible, I just don't feel all that good. My energy is low and I find myself spending much more quiet time than has ever been my custom. Quiet time is good. My propensity toward activity can become obsessive. (I hear family and close friends chuckling as they agree! Even as a toddler, my Dad said my middle name was "Go") So I'm learning to be still.
Is it really less than two weeks until Christmas??
PJ
Friday, December 08, 2006
Last night as I was falling asleep, I realized again just how fortunate I am. I'd had a bit of a rough day and went to bed early. Bob sat down and was reading the Bible. This is the last Psalm he read to me. It echoed in my Spirit. Hope it does the same for you.
Psalm 61
(The Bible in Basic English)
1
5 For you, O God, have made answer to my prayers; you have given me the heritage of those who give honour to your name. 6 You will give the king long life; and make his years go on through the generations. 7 May the seat of his authority be before God for ever; may mercy and righteousness keep him safe. 8 So will I make songs in praise of your name for ever, giving to God that which is right day by day.
Thursday, December 07, 2006
So when I say that on Friday night I showed up for music practice in a sadly mismatched get-up (there's no other word for it), you'd know there is something wrong.
Friday night music has become a weather vane for me. If I can make it to practice, and to church on Sunday morning, my life is on track. It provides a rhythm to my week. So my attention was on just getting there.
Before the excuses, let me describe my costume.
I had on a pair of navy fleece pants (I rarely wear fleece out of the house--only if I'm confident it will be covered by a coat) with a Kane County free-bee tee shirt with some kind of alien looking heads on the front. This was topped by a patchwork flannel shirt (Also not something I wear except to refinish furniture or plant flowers). I had on my old Ugg boots (Now Sheepskin boots are a must in certain kinds of weather up here. All sartorial concerns are off -- but I have a very stylish pair of purple Uggs) to keep my feet warm. I was doing well to even make practice, so I dispensed with the wig and wore a really cute hat that a friend just got me for my birthday. I wore the matching scarf and gloves. They were leopard skin fabric. The hat really would be better OVER a wig, it doesn't come down far enough to conceal the fact that I am very bald, but the scarf sort of covered the neck. Now the crowning jewel. I still had on two pair of dangling silver and purple earrings that I'd used on Wed and Thursday when they matched my outfit.
Did I mention white cotton medical gloves for my hands? My hands had to be kept covered with a steroid cream, so the gloves were necessary whenever I went anywhere or touched anything.
All in all, a classic bag lady outfit. (And my sincere apologies to any bag ladies in the vicinity.) The funniest things is that I was blithely unaware of my odd appearance. I was concentrating on trying to behave normally.
Okay...THE EXPLANATION...The fleece pants....I had had on a matching pullover shirt earlier (cranberry with navy trim). The odd t-shirt wasn't supposed to show, it was just under the fleece. BUT...I'd gotten warm earlier and taken the fleece off when I took a nap. When I got dressed for practice, I wanted something I could get off easier than a pullover in case I got hot at practice too.
The Patchwork Flannel...was just something handy to wear for the warmth of long sleeves over the t-shirt. (It did NOT blend with the pants)
The leopard print scarf, gloves and hat . . . were for warmth AND they were new and very cute (with the right outfit). I did have on a black leather coat that were okay with the hat and scarf.
The earrings . . . AH, here's a story. I've tried to be careful to keep earrings in both piercings. I don't want them to grow closed during this time. I'd used those earrings when I went out on Wednesday and Thursday (On Thursday I picked the outfit to match the earrings because my hands wouldn't work well enough to get earrings in.) So silver and purple they were.
The funniest part is that I wouldn't even have realized how bad I look except that one of my daughters said something on Sunday. At first I was startled, but then slowly realized just how out of character I looked. I must say I've had more than one moment of laughter.
And I'll never look at a bag lady the same again. She, too, is probably concentrating on just doing something normal to feel alive.
I have come out of hypernation or coma or whatever it may be called. Still a bit sore and slow, but alive and kickin'. I had an allergic reaction to this last Chemo. It's called hand and foot syndrome. My hands have been little more than clubs for the last week; thank God my feet aren't so bad. I've been able to walk, just very carefully. When it takes the palms of two hands to hold a phone or a drinking glass, one becomes very thankful for the use of fingers most of the time.
Chemo on the 27th was the first of the second set of treatments. Taxotere. I reacted significantly differently to it from the beginning. Less intense nausea, but I just felt worse. Than on Thursday night, my hands swelled up like paws. So for the last week, I've been on steroids and steroid cream to counteract the allergy. I now have fairly good use of the last two fingers of both hands and reasonable use of the first two fingers. Opposable thumbs are still stiff and not working too well. But it's much better.
My next treatment is now postponed until I recoop from this reaction. My throat is sore too -- it feels like my insides may be as stiff and swollen as my poor fingers. But...the good news is not more chemo until after the holidays. The Doctor will come up with another option for my last three treatments.
So time marches on. I'm not sure where the last ten days have gone. I have spent most of the time sitting and snoozing. But I suppose the rest is good; it allows my body to keep up the battle.
Thanks for your prayers,
PJ
P.S. I thought about gathing up those items and taking a photo -- but my energy is not that high today!!
Friday, December 01, 2006


Things not to do on a snowy Morning!1. Try Horse Radish flavored Oatmeal (even at your favorite restaurant!)
2. Drive more than 20 mph in a white out
3. Drive through Lord's Park (or any other scenic route!)
4. Try being efficient in making appointments or picking up meds
5. Skid left in your driveway into a snow bank.
Okay it's not as bad as it sounds. I followed most of my own advice, except 1 and 5. We were awake at the crack of dawn to get the jump on the snow storm (HA!). Bob had to get to work; I had a Dr. Appt. (An unexplained allergic reaction in my hands...I'm sitting here with steroid cream and white gloves on my hands trying to type.) But we made everything in time to stop for a bite at our favorite little spot. When the oatmeal came, it tasted funny. More than the usual coppery "chemo" taste I always have. So Bob dutifully sampled it for me to be sure I wasn't having hallucinations, and he said it was spoiled. We sent it back to the kitchen where we could see them checking the oatmeal. Then I decided to check the little plastic containers of brown sugar --- one wasn't sugar. Horse Radish does not work as a brown sugar substitute!! :)
Number 2, I followed faithfully and made the Doctor's office before he did. No difficulties except recognizing where to turn when the whiteout obscured the three-story building that was my landmark. I have now learned the name of the street!
I wisely avoided all scenic routes. Good ole thoroughfares for today with stoplights!
It took me from 7:30 until11:30 to make 1 doctor's appointment and 2 pharmacy stops. (My usual pharmacy only had one med I needed --- Natch. It was snowing today!)
And then for a safe landing at home, I missed the ruts which could not be seen anyway since the snow had recovered all the plowing and driving from morning and landed in snow that came up to the running board (dates me huh?) of the car. The car decided to stop. Fortunately our guys came along to shovel the walks and shoveled me out too before anybody decided to come into the drive behind me! Or into me!
Actually my little Taurus, purchased this summer, made a pretty good snow vehicle. It didn't slip and slide like the bigger cars were doing...It just refused to navigate thigh deep snow in the drive! (I just got an email from a friend reminding me that my car is a Stratus!!! -- Thus "little" --Just for the record it was a FEMALE friend who happens to know cars and,,,gives good directions!!) LOL
So goes the adventures of a snowy morning! Maybe I'll really get out later and take pictures for those tropical friends of mine.
I talked to my Granddaughters this morning. M was up at 5 a.m. helping Daddy shovel the walks and use the new snowblower. Exciting things for a 7 year old. M2 was mostly distressed that her snowballs were "crooked". She said she couldn't make a round one. I assured her that crooked ones work equally well, but she still wasn't happy with them. Her five year old brain is positive that round snowballs are better!!
Happy Winter!! (Oh, it's still Fall, isn't it???)
PJDH
Pictures: Inside my living room; A peak out the front door while the guys are shoveling!!; The back patio from the comfort of my kitchen!
Wednesday, November 29, 2006





Photos from Grandparent Day at the girls' school last week. Both Grandmothers visited school and then went to McDonald's for lunch. Aren't they the cutest little dolls??? I felt pretty good...although after the McDonald's stop, I did go home and nap! Too much excitement.
This week, I had chemo on Monday. A new drug, Taxotere. Supposed to have less side effects...and I suppose it does. But I had a nausea episode today, right on sschedule. Noon-ish it hit like a ton of bricks. I had taken a quick trip to Ellis this morning...feeling tired, but okay. I got home in time to be sick. I plan to go back to Ellis for lunch tomorrow. We'll see if I can hold up!! The nausea from this one seems less severe than from the last, however. I still have really sore, red hands...I assumed from putting up Christmas trees -- I nicked my hands a bit on the branches. But they are read and swollen...I wonder if that's a side effect of this Chemo? If it doesn't get better I'll have to call the doctor.
I'm planning to rest more this week, then try to hit Christmas shopping next week. We'll see if these plans work out. I do have something bought for the little girls already, just in case I can't handle shopping between now and Christmas. I have one more infusion before Christmas.
Then one in January, one in February, a couple of surgical procedures and I should be out of the woods!! Thank God. I'll be so happy to be off the sick rolls for awhile.
God Bless!
PJ
Monday, November 27, 2006


I had a really good week last week with only two down days. Tuesday was a wipeout. But I was active and felt good the rest of the week. I helped my granddaughters make a gingerbread house; M did the little tree in the entry way all by herself; I decorated the tree for the living room; Friday night the choir decorated the church. My contribution was the tree in the Narthex with the help of Christy and Bismarck. Saturday I finished the stuff at the house.
It caught up with me Sunday afternoon though. After lunch I took a really long nap (uncharacteristic for me) and didn't do anything else all evening, except eat. I started taken the steroid prepping for today's treatment and did it ever give me the munchies!!
Today is the first of the new set of treatments. The Doctor is positive about this med. He says it has less side effects than the first. (But then he said the first one wouldn't cause nausea! Ha!) So...we shall see. These are also supposed to be further apart, three weeks instead of two. I'm not sure how to reconcile that schedule with the idea that this one is less toxic. Hmmm.
Wednesday was Grandparent day at the girls school. One advantage of disability is that I'm usually available for such events -- if they fall on a good week. Both girls' classes sang a couple of songs. And we visited in the classrooms for awhile. Fun.
M's birthday is today. All week she's been saying that when she wakes up Monday she won't be four any more, ever again. That seems to be an important and happy thing for her.
Pictures later. My default picture editor got set for Nero instead of Windows and blogspot won't accept Nero. I'll see if I can change things. (fixed it! Pics are up, but the "I" is floating up by the picture of M! Computers!!)
PJ
Wednesday, November 22, 2006

This came to my box yesterday...a relevant devotional. Thought I would share it.
A Question of Ownership
TGIF Today God Is First, by Os Hillman
Whoever finds his life will lose it, and whoever loses his life for My sake will find it. - Matthew 10:39
Otto Koning was a missionary in New Guinea. He worked among a native tribe that had known only their village ways. One of those village ways was stealing from others. When Otto and his wife arrived and moved into a hut, the natives often came by to visit. The Konings would notice that after the natives left the missionaries' home, various household items had disappeared. They saw these items again when they went to preach in the natives' village.
The only fruit Otto could grow on the island was pineapples. Otto loved pineapples, and he took pride in the pineapples he was able to grow. However, whenever the pineapples began to ripen, the natives would steal them. Otto could never keep a ripe pineapple for himself. This was a frustration, and he became angry with the natives. All during the seven-year period in which this took place, Otto preached the gospel to these natives, but never had a conversion.
The more the natives stole, the angrier Otto became. Finally, one day Otto had a German Shepherd dog flown in from another missionary to protect his pineapple garden after other frustrated efforts failed. This only further alienated the natives from him.
Otto took a furlough to the United States and attended a conference on personal rights. At this conference, he discovered that he was frustrated over this situation because he had taken personal ownership of his pineapple garden. After much soul searching, he gave his garden to God. Soon the natives started having problems among their tribe. They discovered that Otto was the reason for their problems because he gave his garden to his God. The natives saw a correlation between what Otto had done and their own lives being affected by calamities in their village. When Otto gave his garden to God, he no longer got angry and was free from worry. The natives started bringing him fruit from the garden because they didn't want any more calamities to come into their village.
The light came on one day when a native said to Otto, "You must have become a Christian, Otto. You don't get angry anymore. We always wondered if we would ever meet a Christian." They had never associated Otto with the kind of person he was preaching about because his message did not line up with his life. Otto was broken in spirit when he realized he had been such a failure.
At the end of seven years, he witnessed his first conversion, and many began coming to Christ once he fully gave his garden to God. The fruit grew so abundant that Otto began exporting it and growing other types of fruit, such as bananas. His village became the most evangelized in the whole region, yet for seven years he had not one convert.
Otto realized something each of us must realize: To gain your life you must lose it, along with your possessions. It was only when he gave all his possessions to God that he became free from them. God measured back to him manifold once He had complete ownership.
Do you have some possessions that you need to give up to God today? Let God have all that you have. Become a steward, not an owner. You will be surprised at how well God can take care of His possessions.
THANKSGIVING BLESSINGS TO ALL!
Tuesday, November 21, 2006







Capturing those memories! (This family is a bit camera nuts. That's almost 5 year old M2 with the digital, almost 7 year old M1 with the video, Rob and I both also manned cameras...Creative Memories here we come!) It's Bob's birthday!
We've been married for more than 37 years and during that time have had a variety of Thanksgiving experiences. The first year we spent in the jungle (1976), I didn't have a stove yet, so for Thanksgiving we ate fruit, salad and chicken I grilled in an electric skillet. Some years we've had Thanksgiving with my Dad and eaten wild turkey, sometimes fried instead of baked, and venison for dinner. Or other times we've spent with Aunt Lois and had traditional turkey and all the trimmings. Last year my sister and her kids and grandkids were here and we had a traditional meal here.
I was just looking at the words to "Inconvenient Christmas" and began thinking about Thanksgiving adventures. This year will be calm. The kids are coming Wednesday night -- They're cooking. (No one lets me cook these days. They say I look too tired.) Then Thanksgiving Day they go to their in-laws and it will be Bob and I with Bismarck. Should be very laid back and easy...Except in the evening the little girls are coming to spend the night so Mommy and Aunt Christy can hit the early morning shopping of "Black Friday". (I'd rather poke a stick in my eye than brave the crowds that day!) But we've had our share of "inconvenient" Thanksgivings. But somehow they turned out to be Thanksgiving blessings!
I can't remember exactly which year it was that we got stuck in Bloomington on Wednesday night before Thanksgiving. The boys were young -- high school students -- and Wesley was with us. Our car broke down as we were taking the bypass through Bloomington intending to stop and eat. Instead we just stopped. It was right in front of a car lot. So while we tried to decide what to do, the boys played hide and seek in the car lot and the ditch beside the road.
We finally got the car started, and it sputtered to the nearest hotel. Early next morning we were trying to get it started again and decide whether to try to return to Elgin or keep going to St. Charles, Mo. Another guest ready to leave the hotel helped...he actually knew a bit about car mechanics. We mostly stood around with the hood open and looked on in despair. He said it was the alternator, helped us find a mechanic shop open that would sell one and he put it in. Come to find out they lived in St. Charles and were headed to Chicago. For several years afterwards we exchanged Thanksgiving cards, but have since lost track of such nice people sent by God to be a blessing to us.
Then there were a couple of snowstorm Thanksgivings. When Rob was just a baby we were driving back to Chicago on Sunday. A huge snowstorm hit. We had to park for awhile. Then ran out of milk for the baby and nearly out of gas for the car. Nothing was open on that deserted stretch of Rt 55. Finally in desperation we pulled off into a small town. A restaurant was open, but had no milk. The lady went to her house and got some for us. Then she called the owner of the gas station alongside who came and let us fill up the car. (This WAS 35 years ago!!)
Another snowstorm, the boys were elementary school age. The snow was so bad, again we had to pull off. But this time we cut off the car for awhile so we wouldn't run out of gas. That time it was also terribly cold....waaaaay below zero. I remember reading later that several stranded motorists had died from the cold. We did have blankets in the trunk. So we wrapped up and huddled together in the car for awhile to let the snow clear a bit. God was merciful. The snow cleared and we made it through without further incident.
Another year, another adventure. May your Thanksgiving be filled with blessings. May you find adventure and blessing in those unexpected events. Look for God's hand in all things, even the apparent disasters. You will find that his blessing is there, just reach for it.
Friday, November 17, 2006

Did you know that as of tomorrow there are five more Saturdays before Christmas? And there have been 47 Saturdays since these picutures?

I know this because the Christmas season just arrived at my house...It's arrival was signaled by "The Most Inconvenient Christmas." Now I know my non-Southern Gospel friends will sneer a bit...but that song is still one of my favorites since I discovered it a few years ago. Somehow at Christmastime I need a bit of my roots to remind me just where I come from. While "The Oak Ridge Boys" may not be your cup of tea, you really should listen to that one song at least. I must confess though that the hard rrr's on the "forever" in the Hallelujah Chorus does strain even my Southern a bit. My older granddaugahter (with all the wisdom of her six years) reminds me occasionally when those rr's trip me up! But I'm with her, on a recording "foreva" just seems more appropriate, linguistically speaking.
I think I have welcomed the Season early this year for several reasons. (Can you believe I'm actually contemplating getting out my decorations before Thanksgiving??? Or maybe on Thanksgiving Day since we're celebrating Wednesday night and the kids are dining with their inlaws on Thanksgiving day). Today I'm working on a narration for the Christmas program, perfecting timing to the track. Since my computer crashed last month, I had to reload all the music. While I was at it, I loaded another Christmas CD. So I have the background for Christmas. And then M2's birthday is the week after Thanksgiving and her "Bitty Twins" arrived yesterday. Just having presents around reminds me of Christmas and children's laughter.
But more than that, I don't think I've ever been more grateful or happier to celebrate the Season. This year has been full of such ups and down. So many times I thought that emotionally (or physically) I would crash and burn...but just at the right time, a Word from God arrived. Sometimes it was an email, sometimes a card in the mail, sometimes a plant or bouquet of flowers reminding me that someone cared. Sometimes it was the kind act of a friend or acquaintance that reminded me that He is still in control. More often, it was Bob offering to get me a fresh glass of water, or bringing me a freshly peeled orange when I couldn't sleep at 2 AM. Sometimes it was the pitter patter of small feet and a "Grammie?" that came rushing in the door of the house or the church that lightened my heart and made me realize that though this has been an inconvenient year, I'm here. And I'm grateful.
Okay....just for you really non-Southerners out there who will never listen to the song even for a minute, here are the words from "The Most Inconvenient Christmas". Prepare to belly laugh!! It comes across much better WITH the music. Trust me!
"Among the bills that I'd received
Was a postcard marked "Apologies"
The Christmas gifts you've ordered aren't in stock
So I packed up the kids for Grandpa's House
Then a blizzard blew in and the car broke down
So we shared a quart of eggnog at a truck stop
And I said; Kids, this is unfortunate
You think it's bad? Well, it's inconvenient
CHORUS
But the most inconvenient Christmas ever was
Was the first one when God came so far
To give Himself to us
So when stress hits each December
How it helps me to remember
God is with us most when things just can't get worse
The Most inconvenient Christmas ever was...
Was the first
By the time we got to Grandpa's house
His Christmas lights had burned it down
So we had to take him home to live with us
But he couldn't stand to leave the farm
So now there's cattle in our yard
Sheep on the rug, Pigs in the tub and a rooster at dawn
And I said: Now Honey, this is unfortunate
You think this is bad? Well, it's inconvenient
(Repeat Chorus)
A young girl expects a child she can't explain
Forced to walk a hundred miles just to give birth in the hay
Wile the king at that same hour
Fearing challenge to his power
Sent his troops to track them down and wipe them out
Yep, hand down...
The most inconvenient Christmas ever was
Was the first one when God came so far
To give Himself to us
So when stress hits each December
How it helps me to remember
God is with us most when things just can't get worse
The most inconvenient Christmas ever was...
Was the first.
A a very Merry 5 Saturdays to you!!
PJ
Wednesday, November 15, 2006






I said someday I'd post the hair cut pictures. So here they are. At the top I had cut my hair really short because it had just begun to shed. The picture is when it was shedding still more, even short. The short "do" lasted for a week. (I lost the pictures of the first hair cut when my computer crashed). That night it was bald on the right side where I sleep. So I just stood over the sink and combed and patted the hair out. It came out by the handfuls, leaving me with about 20 hairs. I asked Brad to come with his shears to finish the job. M1 helped while M2 recorded it all! The last photo is of me the evening of Oct 31st at the girls' celebration. My "chemo" eyes are evident. That's about what I look like today.
Later I'll post one with the wig...I don't have one handy at the moment -- and maybe one now, when I'm totally bald. :)
Later
PJ
I have arisen! As usual nausea and illness hit 36 hours after infusion...that was about 4:00 a.m. today. I spend the morning in a chair, napping and trying to keep various nausea and headache pills down. About noon, after Bob came in with iced tea from Panera (I don't know what they put in their tea, but it is very mild and calming) I graduated to the couch with enough energy to watch TV Land for awhile. (Bonanza still reruns!) Before I went totally braindead from old TV, I managed to stagger to my computer and answer a few emails. Voila' I have arisen! Hopefully, the worst of this episode is behind me.Monday was the last of this series of four. Now there is a new series of four that I will learn about on Monday. (Along with more booster shots for red and white blood cells! I am a veritable pin cushion -- correction, that would technically be needle cushion!)
I'm so hoping that the effects of the next series are less severe. I really need to get back to work after Christmas. One semester is all I can do on disability. After that it's the poor farm. But God has it all in control!
Now the holiday season is upon us. First Thanksgiving and then Christmas. Not to mention that four of these eight Huertas have birthdays in November with one in October and one more in January. Christy and Bradley had the good sense to be born in June and July! So we shall be celebrating regularly for the next several weeks.
Last Sunday was our "Christmas Child" shoebox collection. That's always a precious time. Filling shoeboxes to be sent to all four corners of the earth as gifts for children who have not even the basic necessities.
And speaking of basic necessities...Bob is here. So let's have a cup of soup for dinner!
PJDH
Tuesday, November 14, 2006

There is something wonderful about a good night's sleep. I've actually had four consecutive nights. Not last night, but that's okay. I'm still feeling better. Yesterday I had the last infusion of this protocol. I see the doctor on Monday, and we'll set up the next protocol. Change of drug...maybe change of timing. But this week is the last of the hangover from this particular drug. In two or three weeks, it's a new ballgame. I'm now halfway through the infusions, although the next set may take more time. He's talking about three weeks between treatments.
(The picture is from summer--when I had hair. I tried uploading a different one and it didn't work. More pics later.)
Wednesday, November 08, 2006
I did go back to the Doctor this afternoon for another CBC (blood test), and my counts are moving up. Not enough yet, but up. (Maybe another reason I feel less "sick". Having a few red blood cells makes one feel a bit more lively.) Both the white cells and the red cells had been terribly low. But I've already had a blood booster last Monday (10 days ago) and another this Monday (3 days ago) and they said they can't give me anything else right now. I'm supposed to go back on Friday to see if the improvement continues. I suspect it will be better since the flu is gone and that was affecting me as well. I don't know if there's anything they can do on Friday or not, except delay the last treatment. Wait and see.
God is good. All in His time. Today, I'm simply grateful that I feel alive!
PJDH
Monday, November 06, 2006
I so recall anticipating our arrival in Ecuador as missionaries. It seemed to me that at that point, my life would start. I'd be doing "real" ministry. As I look back now, it's almost funny, nothing really changed except geographic location and the nature of some day-to-day activities. But those activities still including caring for two very young children, preparing meals, shopping, doing family activities, teaching classes and going to church. In truth the same tasks I'd spent time doing here in the US.
The proverb, "Life is a journey, not a destination" holds true now, as then. Life is in the living, the daily grind, the mundane activities of living. More often than not, it takes vision and purpose to see past the mundane, to see the purpose in what we do. So I'll leave you to ponder that thought. I don't think I can prose on about the purpose in suffering right now. Maybe later.
Besides Chemo last Monday, I got the flu. It seemed as though all the symptoms just morphed and I spent most of the week groaning and wondering if and when things would get better. I think I'm out of the woods now. I go get a CBC this afternoon; those blood count numbers tell all. I'll know then if indeed I'm on the road to recovery and ready for another session next Monday or if some other intervention is required.
On a positive note, I made it to church Sunday...missed Friday night. The service was wonderful. God never disappoints! Our youth group had participated in "Acquire the Fire" on Friday and Saturday and they were excited as never before. It's great to see the youngsters lively and participating. I also managed to sing, a bit breathlessly, but I made it through the songs thanks to our team who knows how to cover for me!
Jehovah Rapha!!
PJDH
Tuesday, October 31, 2006
The migraines are the major difficulty. They have three sources, all of which require different treatment. The usual migraine, from stress or God knows what, for which I have my migraine medication. Then the headache from the chemo which is slightly different and nothing much seems to work, since it's related to the nausea, that med works better than anything. Then since this treatment has thrown me into the middle of menopause (Groan, yes something else to cope with)...my hot flashes cause mega headaches which respond only to an herbal (Black cohosh) to reduce the body temperature. This all lasts for about a week. Seven days laster, I can set most of the pills aside and slowly resume life.
Bottom line: anything I want to do between now and next weekend, I'd better do today!! I'm hoping for enough of a reprieve to get out to see the girls in their costumes early this evening.
After my week of chemo struggles, my computer crashed. The motor in the hard drive refused to work. So....I lost all of my data on the hard drive. Unfortunately the most recent pictures were there...I lost tons of them. All of the hair cut pics...I have some of the totally bald one...one of these days I'll be brave enough to post them. But not today.
Since the DVD drive was already defunct and the computer is of course out of warranty, we decided to replace it. Rob is our computer specialist, so he purchased, formatted, and installed my new computer, only to have the fan on it freeze and eventually the entire thing froze. So two days into the new computer, it had to be returned for another. Rob did recover my hard drive, so the pics that had been in the camera and I had downloaded were rescued. Computers! Love the things when they work. But when they don't.... Today, however, this little baby is purring along very well.
I'm debating. Should I even post this?? It sounds...well ...complaining. I'm really not complaining. God has been good. One bad week, one good week is more than some people get. FOr that I'm grateful. This isn't going to last too terribly long either. Since #3 is under my belt (or in my veins!) there's only one more to go on this protocol. The second protocol also consists of 4 treatments. I don't know what side effects I'll have from that one. Maybe not as severe. This one is supposed to be the awful one...referred to by chemo patients as "The Red Devil" The fluid is actually red.
Enough. I'll try doing something much more upbeat next time.
PJDH
Monday, October 16, 2006
I still can't enter pictures. This computer doesn't have Moxilla Foxfire which enters the pictures on Blogspot much better than Internet Explorer. They just are not being read, although it says they are uploaded! I found copies in my email that I had sent out, so was able to get the pics stored on this computer. But, alas, further technical difficulties.
I suppose when my computer is up and running again, I'll enter a picture page of the progression of my hair. It's getting worse. The haircut worked well for sunday, but this morning the right side that I sleep on will barely cover the receding hairline (bald spot, actually). And on the top the part is about an inch wide. Today I could still more or less cover by combing backward (Not a Donald Trump overcomb!!) and having no part. But by tomorrow the right side will be gone and the top bald.
Solution: Tomorrow night Bradley is bringing his Barber clippers and off my hair goes. I'm thinking I'll do just a short male kind of cut--really short on sides and about half an inch on top. Kind of like a flat-top. Then I can still see what is happening, and use just my hair around the house, etc. But for going anywhere--the wigs are ready and waiting!!
It will be a metamorphosis in hair loss....I'll have to do a picture series.
God is good! Mercy and Grace, Lord.
PJDH
Thursday, October 12, 2006
I think I'm related to the little girl with the curl in the middle of her forehead. You know the one. When she was good, she was very, very good, but when she was bad, she was horrid. :) Well when I feel very very good, I'm too busy to blog. When I feel very very bad, I'm too sick to think well enough to blog. So I have to be in-between in order to be able to reflect and have the time to write.
It's 3:30 a.m. I'm not feeling very, very bad, just achey and sleepless. So....time to catch up!
Beginning today:
I went for my second session of Chemotherapy, but my white blood cells were too low. So instead they gave me two shots (The red has been low for some time) and sent me home again. But...I think because the red cells are actually up a bit, the white doesn't affect my energy...so I felt pretty good today.
Thankfully, I felt good because I'm shedding like a shaggy dog. I didn't notice until I washed my hair this morning. My hair isn't coming out in handfuls, more just little bunches of 5-10 hairs at a time (No! I didn't stop to count. That's a guestimate!) I had braced myself for chemotherapy today and believed that the hair loss would probably start a few days later, since there was no noticable effect after the first session. I was guessing 5-7 days after the second. Well...mine is going two weeks after the first. I thought I might have a Hallelujah breakdown...but I didn't. I just decided that the loose hair in my face was annoying, so I got a very short haircut. It gives me a different look which I wouldn't choose, but it's okay.
My computer has chosen this moment to go on the fritz, so the pictures I planned to download with my new hairdo are stuck in my hard drive at the moment. (I'm on a borrowed computer.)
Yesterday I went for my second chemotherapy appointment, but couldn't have it because my counts were too low. So today, tomorrow and Friday I get a shot to build up my white blood cells and then we try again on Monday. The only difficulty with that shot is that it makes my bones ache -- like the flu. Interesting isn't it that stimulating bone marrow to produce makes the bones ache. Is that what makes one ache so much with a virus -- the bone marrow is overactive?
Since I haven't written for over a week, I'll go back to the aftermath of the first chemotherapy session. After being sick as a dog (Hmmm shedding like a dog, sick as a dog...is there a theme to these metaphors?) for those three or four days, Bob called the massage therapist who has helped me before. She said that I might be reacting to dehydration and "prescribed" Gatorade. Voila'! Two days and countless bottles of water, Gatorade and even Propel, I felt much better. I do so have to watch hydration. I need to drink about a gallon of water a day -- yes! 128 ounces!! That's a lot of liquid, especially since coffee doesn't count! Although when I'm so nauseous, coffee doesn't taste good. I still like the IDEA of coffee, but the liquid itself doesn't go down well.
So after re-hydrating, I did fairly well for a week. The biggest problem as far as I FEEL, is that I have a constant nagging headache, ready to explode into full-blown migraine. Mostly, I can keep it in check with water or Propel (Propel does have a small amount of sucralose which isn't particularly good, but that's the smallest ingredient...so I'm using it, since watered down Gatorade just doesn't sit well unless I'm really dehydrated)
That takes us up to today -- or actually yesterday at this point -- wednesday, to be precise. And the low white cells. Skipping Wednesday's chemo does put my schedule off-kilter. Getting back to school can only occur after I have a reasonable white count otherwise every kids with a cold is a deadly weapon to me. Since I see 125 or so kids a day in an enclosed environment, 25 at a time, that's a lot of weaponry aimed at me. So I'll just skip it for now. :)
And that's been my very very good, and very very bad weeks lately!
I'll add pictures whenever my computer decides it will actually begin working again! I've re-started it a couple of times. No luck. I just did the old "unplug the thing" trick. We'll see if that remedies my problem or if my computer is dying of old age. (The silly things have a very short lifespan!)
PJDH
Wednesday, October 04, 2006
On Monday I really wanted to go to a conference held in Wisconsin. It's a bit over an hour from here and we weren't sure I was really up to it...but I had been eating a bit on Monday, so I decided to go. Rodney was driving. Bob and I rode with him. I made a bed in the back seat (no highway patrol reading this???) with a comforter and several pillows so I could lie down. I packed my emergency supplies...paper towels and a strong plastic bin, plus one of each med...just in case nausea hit again. It was funny. The back seat was full with just my stuff! It was a wise choice, however. I did not get ill, was able to rest, and the conference was wonderful!
Bishop Joseph Garlington was the speaker and was inspirational, entertaining, but most of all anointed. I'm paraphrasing some of the ideas and expanding or reflecting on others that apply to me. I hope it helps you as much as it did me.
There are two definitions for the word ought. The first, is a duty or correctness, especially in critizing. (One ought to do thus and so.) The second, is a desirable or expected state. (If I work hard, I ought to succeed.)
The pharisee was CAUGHT BY THE OUGHT. Jesus healed a woman on the Sabbath and the ruler of the synagogue rebuked Jesus for healing her on the Sabbath. "You ought not heal on the sabbath." Never mind that the woman had come for worship because the synagogue WAS OPEN on the sabbath and was not generally open on other days. Jesus wisely turned the tables on him by using the same phraseology, "This woman is a daughter of Abraham and she ought to be healed, especially since this is the sabbath." The Synagogue Ruler was "caught by the ought." Jesus used his own words to defeat him. The crowd recognized the correctness of Jesus' actions and freely rejoiced.
T.D. Jakes has recorded a sermon (and a movie, I think? If not, it should be!) about this same passage: "Woman, Thou Art Loosed." If you haven't heard the CD or read the book, I highly recommend it. Both are available through Amazon.com.
I've reflected a great deal on the thought of "ought to be healed." It's especially applicable right now as I'm in the throes of chemotherapy, the last step on my road to wellness. I do believe that we live in a multi-dimensional world. There's the physical reality that we see, an intellectual reality in our minds, there's a powerful psychological reality that affects both mind and body, sometimes it controls both mind and body.
But there is another transcendent reality - - that of the spiritual. We access God and angels in that spiritual realm. I contend that there is a complete world out there of which we only glimpse shadows or sense the depth of it. A reality that includes not only God and His angels, but also the fallen Lucifer and his angels.
It is the wish of Lucifer that we all be destroyed, condemned as was he. Using a parable and the metaphor of a thief, Jesus speaks of the conflict of these two worlds.
John 10:10 "The thief cometh not, but for to steal, and to kill, and to destroy: I am come that they might have life, and that they might have it more abundantly."
I've stated before in this blog, only partially in jest, that I think that this disease, Breast Cancer, comes from the pits of hell since both the disease and then it's current cure, strikes at the heart of all that is feminine and Godly! In fact, cancer of all sorts, the human body turning against itself, seems to me as though it must come from that netherworldly area.
So, although I shall continue to use all means within my power to gain wellness, the physical (medical), intellectual (positive thoughts), the psychological (maintaining a positive attitude), I also believe that God ought to heal me: my reliance on the spiritual. And of all worlds, the spiritual is transcendent! Of that I am sure!
Hebrews 4:10 "Let us therefore come boldly unto the throne of grace, that we may obtain mercy, and find grace to help in time of need."
I love the way children come up with truths. We were driving in the car the other day and out of the blue my very wise little six-year-old granddaughter offered this piece of advice, "Grandma, when we pray, we can't just ask God for what we want."
"No?"
"No, Grandma, that would be telling God what to do. We tell him our problem and He sends an answer. Sometimes it isn't even the answer that we want. But it's always the right one."
AMEN! Today, God I need Mercy, and Grace to help.
PJDH
Tuesday, October 03, 2006




The girls and I worked in my crop room tonight and made pom pom scarves. We had lots of fun with needle and thread!! M2 did rather well with her first sewing project. M does well with needle and thread. Actually she can thread the needle better than I can! Young eyes! Even M still needs help with knots. And M2 does tangle her thread from time to time.
The photographs are taken by the girls too. M has been quite good at pictures for a couple of years now. M2 is just taking up the habit! (I'm addicted to photos -- can you tell?)
As you can see, my hair is still intact. No change at all that I can tell. I'm finishing this on Wednesday and this is day 15 of a migraine. That seems to be the theme of chemotherapy for me: headache. Nausea is gone. I'm eating well.
God is good!
Phylis
Monday, October 02, 2006


This blog is actually out of order. Stuff from the previous weekend...I wrote only a bit that Sunday. I was really tired and the headache had begun.
So...for some happier stuff.
Hair loss hasn't occured yet. Though some say it takes a few days after the second infusion for that to occur. I'm pretty much ready for that. My sister was here (9 days ago now) and we went "cranial prothesis" shopping. (No, I may need a new brain -- I think that would be cerebral prothesis -- but for the vocabulary challenged, think cranium, top of head!) :) There's a hint at the top of the page!
It was fun. Sisters are like that...anything from the grueling to the trivial can be fun when done together! A wonderful place for wigs was "Lulu's Wiggin' Out" in our own Algonquin. Right on mainstreet. A terrific selection and really, really helpful people who let me try on nearly every wig in the store! It's a tiny shoppe with an enormous inventory, so the shop looked like me on a tear through my closet by the time we finished two hours of wiggin' out! I did buy two...pictured above.
So...a word to those who know me: If I show up in that darker and shorter one, it means the hair has fallen out. That's my new look. After all what's the fun of a new wig if it doesn't have some fun attached! I was looking for an even shorter spike in about the color I have now, but couldn't find the right one. They actually had the cut and could have ordered the color, but every wig company has slightly different colors. I found that colors very close just aren't the same. One I would like a lot, the other not at all. The strawberry one almost like mine now has to be worn with a hat or wig, but gives me a more 'normal' look, for those days when I want things to seem normal.My 'old' Ellis friends will recognize the hat I stuck on the longer wig. Remember my hat days? (Before I was asked to cease and desist.) They're comin' back. I have to rediscover my hats!
But who knows? My 4-year old granddaughter insists that wigs are unnecessary because my hair may not even fall out. (T'would be nice if she were prophetic!)
Hopefully!
PJ

I haven't written because I haven't had the emotional (for the beginning of the week) or physical (end of the week) strength to do so. Blogging is good for me, but I have to be "in the groove" and this time I lost my groove. Isn't there a kids book about somebody getting their groove back? Seems it was a camal....the only "lost groove" story I could find referenced was NOT a kid's story! Anyway, this morning I feel as last back to semi-normal...enough sanity to reflect on what's happened with a headache only lurking in the background.
Ah, the joys of chemotherapy! If I had a choice, I'd take surgery, any day. Such a choice: Poison? The knife? Ehh! The actual process is fairly benign. One simply sits while the stuff drips in, drop by drop. I had had a migraine for a couple of days before chemo and hesitated taking my full migraine med. MISTAKE! So that I was still headachey on that day. That day and the next, I felt slightly flu-ish and the migraine accelerated slowly .
Then on Friday, it hit! The full whammy. For the next 48 hours I could drink nothing and even so my stomach did full-fledged convulsions every two hours...on the hour. I finally managed to eat a bit of banana to get the anti-nausea pills down. Finally sometime Friday I realized that the anti-nausea was reacting to cause the migraine. (At this point nothing produced relief) After calls to the doctor and changing pills three times, I managed to drink sips of Propel during the night Saturday night...which saved me the joys of a hospital visit and intrevenous fluids. Then Sunday morning, I added water and finally iced tea to my diet of bananas and Propel sips. By evening I had eatten a few bites of rice, a bit of soup and even a couple of bites of chicken....Hurray!
Today I managed oatmeal and a piece of toast for breakfast, so maybe the stomach gymnastics are over for this round. The Dr. did tell me to be sure to taken the anti-nausea stuff a couple of days before the next infusion of chemo. That might stave off the fury of my stomach. He did say that only about 20% of patients have this reaction to what I'm taking. (Sure glad it isn't the stronger stuff! Now there's a reason to rejoice)
Only three more infusions of this (the Red Devil plus some other, I don't have the names down yet). Then four of the next regimen. I need to do some research on the next one and see what I can expect. If it's like this one, ugh! I suppose the upside is that I might lose a few pounds. . . hard way to go though. I think I'd prefer Weight Watchers.

